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The Princess and The Prosthetic

No Choice

February 1, 2023 in Family, Motherhood, Warrior Princess - No Comments

“Where there’s a will there’s a way.”

“You always have a choice.”

“Choose joy.”

Y’all know me.  I will be positive and optimistic til the day I die.  It’s how I live my life, it’s the lens I look at events through, and it’s the foundation I’ve built our life on after all of our experiences.  Optimism rooted in gratitude.

But I would be remiss if I didn’t call out that we do, in tandem, acknowledge the suck, the crappy, and the heart-breakingly hard things that do go along with parenting a child with a disability.

And one of the biggest challenges I think there is for parents of a disabled child, is there are a lot of things that I don’t have any power over–I simply don’t have a choice.

I didn’t choose for Callie to have a disability that will affect every aspect of her life.

I didn’t choose to watch my daughter fight for her life at three days old.

I didn’t choose for her to have to have two open heart surgeries, multiple hand/knee surgeries, or a lower leg amputation.

I didn’t choose to hear her soul shattering scream for me as she came out of anesthesia.

I didn’t choose to take on over a million dollars in medical debt.

I didn’t choose to have people stare at us and point fingers every single time she walks into a room.

I didn’t choose to have PTSD from my birthing experience.

I didn’t choose to battle insurance companies weekly to get the adequate supplies, therapies, and devices she needs to live a happy and fulfilled life.

I didn’t choose for my marriage to be fundamentally impacted by Callie’s health issues.

I didn’t choose to delay plans for the future because we have to worry about saving for Callie’s future.

I didn’t choose to not have anymore babies because I’m so afraid I will “cause” something to happen to my child again.

I didn’t choose for my daughter not to live in  world that’s not accessible for her.

I didn’t choose for her to struggle to find pants that fit over her prosthetic leg or shoes that will work with her prosthetic foot.

I didn’t choose to hear her ask “Why me, Mama?” over and over when she gets frustrated.

I didn’t choose to watch her wistfully watch other kids run unencumbered on the playground.

I didn’t choose to have her spend so much of her life in the hospital.

I didn’t choose to live life on high alert for the next medical emergency.

I didn’t choose to turn down job opportunities because I know that I can’t manage multiple doctor’s appointments, physical therapy appointments, and a high stress job.

 

I think my biggest frustration on some days is that I don’t have a choice at all and…….I never had one.  I was thrust into this life, this role, and this responsibility without a moment to process, grieve, or even say goodbye to my “old self.”

So sometimes I can’t choose joy.

I can’t choose happiness.

I can’t choose positivity.

Some days………the only choice I get to make is to not give up and continue to advocate for my child.

Jaime

Hi everyone! Thanks so much for stopping by! My name is Jaime! Wife to my better half, James, who is my moon and all of my stars. We are parents to our little warrior princess, Callie Grace. We started this blog to share our journey as we navigate through our crazy beautiful life. Callie is a lower limb amputee and I am a Type One Diabetic. We are hoping to change the face of beauty one step at a time! We hope by sharing our story, you leave with a little bit more inspiration and hope! Thank you so much for stopping by and joining our tribe!

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About Me

About Me

Jaime

Hi Y'all! I’m Jaime, a proud working mama, author, girl boss and wifey to an ultra-adorable husband. I am a huge book nerd, I drink coffee like my life depends on it, and run on dry shampoo and Amazon Prime. Leopard print is my favorite color. I am a story teller at heart and this blog is a virtual scrapbook of our crazy beautiful life. I'm a Type One Diabetic and our little warrior princess Callie is a lower limb amputee. By sharing how we’ve chosen to flourish in the garden we’ve been planted in, we hope you can take some small nuggets of hope, inspiration, and laughter. We are so grateful that you’ve found us—welcome to the fam. We embrace our perfectly imperfect lives and don’t let the doctor’s appointments, spreadsheets, speaking engagements, 10th birthday parties to plan, housework or date nights overwhelm us. Those things are just the beautiful reminders of all the blessings in our lives. Read More

Jaime

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