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The Princess and The Prosthetic

How to Reignite and Re-Energize Your Passion for Advocacy

As a parent of a disabled child, I feel like I’m constantly advocating.  I’m constantly looking for ways to educate, shed light, call out areas of opportunity for people like Callie. I’m passionate about it, fired up, and want to change the world. It’s also not lost on me that I also have my own chronic health condition, Type One Diabetes, and literally work as a Patient Advocate at a large medical device  company. I’m advocate for a living and then go home to continue to advocate for our little girl.

I advocate all day long.

And sometimes…….that spark dims.  And I feel tired.  And a little overwhelmed.  A little dejected. And a little like I’m relentlessly trying to move the needle that’s just determined not to move.

And I lose a bit of that passion.  And I find myself slowing down.

Which hurray, means I’m human.  Everyone feels like this–whether you don’t feel as excited about your job, or your relationship, or your fitness journey, your quest to get your college degree, or your goal to hike all of the National Parks, sometimes the momentum and motivation just disappears.

And that’s ok.  You’re human remember?

But if you’re looking for ways to reinvigorate and reignite that spark for advocacy, here’s a few things that have worked really well for me.

Remember the little wins.

Little by little, a little becomes a lot. By giving attention to small wins, you are making your conscious mind focus on the positive.  It’s no secret that I believe that whatever we put our focus and energy into will flourish–and by doing so, the more abundance we attract, the more positive energy we attract, and the more opportunity we open ourselves up to.  Remind yourself to celebrate every little win because every one of them was a big deal.  Each one got you one baby step closer on the journey.

Remind yourself how far you’ve come.

One of the most impactful things I do to reignite my passion for advocacy is to look back at where we’ve started.  Perspective is a powerful thing.  Doing a quick walk down memory lane reminds me of the tough times we’ve faced, the rough waters we’ve navigated, the times I’ve somehow managed to find my way home on the darkest days, and all of the heartbreakingly hard things we’ve triumphed over. It reminds me of all the times we’ve been knocked down but come back courageously from the shadows.  It reminds me of our continued history of being unstoppable and how strong, capable, relentless, and tenacious we truly are.  Remember that time you championed for changes to the 504 plan?  Remember that time you got the insurance to cover the extra liners?  Remember that time you got to participate in Disability Day at the elementary school and got to teach a bunch of wide eyed kids about disabilities?  Remember when your essay was published in a book?  All of those times remind me of something Herculean that we stood up against and successfully overcame.

Take some time off.

Honestly, maybe you are burnt out.  Being a parent of a disabled child is HARD. In some cases, you might not have the capacity to take time off from advocating for your child–it could be a situation where you have to stand your ground, show up and do the work.  But in the instances where you do have the ability to pause for a minute….maybe it would be good to take a beat.  Getting re-energized and reinvigorated will take additional energy on top of what you need daily, so take a break to rest, realign, and rejuvenate where you can before diving headfirst back into advocacy.

Pick Your Battles

If you are feeling like the passion is gone, picking where you direct your energy is key.  When I find myself feeling like this, I tend to try to be strategic about which areas of my life are the most important to focus on.  Do I need to reply to every ignorant and ableist comment on the internet?  No.  Do I need to educate random strangers at the airport about why my daughter can’t go through the normal TSA screen process?  No.  Do I need to stop to answer every “What happened to your leg?” question that we get?  No. Do I need to engage in warfare of the comments section on social media? Absolutely not.

Do I need to call the insurance company to make sure that her prosthetic gel liners and socks are covered? Yes.  Do I need to write an essay about diabetes management for Yahoo?  Yes.

Picking my battles ensures that I’m not engaging in things that will add to my burn out and keeps me focused on things that will truly move the needle.  When I can see little wins happening again–like the insurance approves the liners and socks, that momentum inspires me to keep going.  Suddenly, that spark is ignited again.

Realign to the goal.

For me, this means reminding myself of the “why.”  Why am I advocating?  Why is this important? Why do I need to do this?  And the bottom line will always be the same, because she’s my daughter.  Because I love her.  Because she’s worth it and deserves to have access to tools, resources, equipment, and included wholly into society.

I hope these suggestions help–and I hope they are just the spark that you need to feel re-energize and reignited in your advocacy journey!

Love and light–


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Hi everyone! Thanks so much for stopping by! My name is Jaime! Wife to my better half, James, who is my moon and all of my stars. We are parents to our little warrior princess, Callie Grace. We started this blog to share our journey as we navigate through our crazy beautiful life. Callie is a lower limb amputee and I am a Type One Diabetic. We are hoping to change the face of beauty one step at a time! We hope by sharing our story, you leave with a little bit more inspiration and hope! Thank you so much for stopping by and joining our tribe!

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About Me

About Me


Hi Y'all! I’m Jaime, a proud working mama, author, girl boss and wifey to an ultra-adorable husband. I am a huge book nerd, I drink coffee like my life depends on it, and run on dry shampoo and Amazon Prime. Leopard print is my favorite color. I am a story teller at heart and this blog is a virtual scrapbook of our crazy beautiful life. I'm a Type One Diabetic and our little warrior princess Callie is a lower limb amputee. By sharing how we’ve chosen to flourish in the garden we’ve been planted in, we hope you can take some small nuggets of hope, inspiration, and laughter. We are so grateful that you’ve found us—welcome to the fam. We embrace our perfectly imperfect lives and don’t let the doctor’s appointments, spreadsheets, speaking engagements, 10th birthday parties to plan, housework or date nights overwhelm us. Those things are just the beautiful reminders of all the blessings in our lives. Read More



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