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The Princess and The Prosthetic

Working (Remotely) Mama

February 21, 2023 in Family, Motherhood - No Comments

Since the pandemic, I’ve worked from home.  And we are now transitioning back to being in the office full time…..

And as the parent of a little girl with a disability and also having a chronic disease like Type One Diabetes myself—this transition is HARD.

I think the pandemic reinforced for a lot of people the general lack of accessibility and inclusion within the workplace for people with disabilities and chronic illness.

In the past, most companies had some hesitancy around how remote working might operate and lacked experience in seeing it in practice among employees—which created a huge barrier for people with disabilities and chronic illness to overcome.  In many ways, the pandemic accelerated and mainstreamed a shift in corporate mindset regarding remote work.  Suddenly, it wasn’t just people with disabilities who were faced with the obstacle of being able to make it into the office every day—now it was the entire world who was challenged to work from home.   We had to make the shift to be more modern, innovative, flexible, and diverse and the prime beneficiaries of that mindset change were families like my own.

Over the course of the last three years, I’ve been able to experience a level of flexibility that I never could have dreamed of when it comes to being a parent of a little girl with a disability.

Simply by removing the 2+ hours I used to spend in traffic, I’m able to take my daughter to her physical therapy sessions and add in additional sessions with an inclusive sporting team where she participates in archery, running, and horseback riding.  The extra money we save from working from home also allows us to purchase accessibility aids for her, chiropractic sessions, and extra supplies for her prosthetic leg.

I can drop her off and pick her up from school each day.  I know that to most, it’s hard to understand how this could be such a significant item.  But we live close enough to the elementary school that the busses don’t run in our neighborhood.  There’s absolutely no way that Callie could walk the 2+ miles to school AND back each day safely or comfortably with her prosthetic leg and now that I work from home—it’s a 5 minute trip for us to the school to do drop off.  That was near to impossible to do pre pandemic with my work schedule and commute each morning—a constant schedule juggling between my husband and myself that left us both stressed out and upset.   It was near impossible to do because that type of “flexibility” needed for families like my own are not generally covered under any type of protection.  I could apply for an accommodation but flexibility to pick up and drop off my daughter, flexibility to be able to set my own hours so I can take her to physical therapy, and flexibility for the hundreds of other scenarios that pop up regarding my Type One are not generally covered with an accommodation.  There are countless families in similar situations–forced to decide between making a job change, quitting their job, or going on government assistance so they can juggle the daily responsibilities of parenting a child with a physical disability, chronic disease, or learning/neurological disability.

Working from home in such a close proximity to her school let’s me be available in the instances where a pin falls out of her leg, she gets fatigued, or she simply gets sick and needs to be picked up from school.  It’s not a huge disruption to my day for those things to happen and I’m able to quickly resolve them and be back to work in a very short time frame—where as before, I would have to take a personal day and miss work to handle those type of “routine” things that a caretaker of a disabled child has to manage. There are so many small nuances of being a parent, let alone being a parent of a disabled child, that working from home has given me the freedom and autonomy to manage successfully.

Working from home has also benefited my Type One Diabetes.  I’m not being constantly exposed to flus, cold, and random viruses that impact me more harshly than someone else with a normal immune system.  I’m able to work out or take a walk on my lunch break which has improved my overall health in the last three years and improved my A1C.  I’m not forced to make questionable decisions—driving to work immediately after having a low blood glucose reading because I’m worried about potentially losing my job if I’m late to work or postponing lunch because I’m in a very important meeting.  I’m able to better control my stress levels at home which keeps my glucose levels more stable. Working from home, I’m 900% more productive and I actually end up working more hours that I did when I worked in office—those extra hours are just during times that work best for my schedule.  I can do the extra time because I’m not wiped out at the end of the day like I used to be when I worked in the office.

In reality, the pandemic helped my family make our “disabilities” less predominant.  I could handle the intricacies, the hundreds of nuances, and the constant juggling that it entails quietly.  No one was the wiser.  No one on the Zoom call knew I was treating a low blood glucose level–no one on that Zoom call even realized I had diabetes.  No one on the Zoom call knew I had a kid at home because she developed a sore and couldn’t wear her prosthetic leg.  I could mange through those things quietly, with dignity, and still show up in my position at work well.

And so I wonder—as many companies are navigating return to office, what about work life balance?

What about people with physical disabilities?  What about those that are immune compromised?  Shouldn’t we do a better job to protect them and offer them options to safely, comfortable, and peacefully work from home if they need to?  We were making such great strides and now I fear we’ve taken two steps backwards.

If I’m more worried about the potential strain this is going to put on me physically again—does that mean my company could think I’m not a good leader?

If I raise my hand and say that I’m worried about returning to work and losing that flexibility, does that make me look like I’m not a team player?

Am I a risk because I do have someone at home that needs me to be more readily available?  Will people think my priorities aren’t clear if I do have to miss work for her?

Or am I the only one that’s worried about this?




Hi everyone! Thanks so much for stopping by! My name is Jaime! Wife to my better half, James, who is my moon and all of my stars. We are parents to our little warrior princess, Callie Grace. We started this blog to share our journey as we navigate through our crazy beautiful life. Callie is a lower limb amputee and I am a Type One Diabetic. We are hoping to change the face of beauty one step at a time! We hope by sharing our story, you leave with a little bit more inspiration and hope! Thank you so much for stopping by and joining our tribe!

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About Me

About Me


Hi Y'all! I’m Jaime, a proud working mama, author, girl boss and wifey to an ultra-adorable husband. I am a huge book nerd, I drink coffee like my life depends on it, and run on dry shampoo and Amazon Prime. Leopard print is my favorite color. I am a story teller at heart and this blog is a virtual scrapbook of our crazy beautiful life. I'm a Type One Diabetic and our little warrior princess Callie is a lower limb amputee. By sharing how we’ve chosen to flourish in the garden we’ve been planted in, we hope you can take some small nuggets of hope, inspiration, and laughter. We are so grateful that you’ve found us—welcome to the fam. We embrace our perfectly imperfect lives and don’t let the doctor’s appointments, spreadsheets, speaking engagements, 10th birthday parties to plan, housework or date nights overwhelm us. Those things are just the beautiful reminders of all the blessings in our lives. Read More



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