When we left the NICU after Callie was born, I remember the doctor asking me if we had any questions before we left.
Questions?
Yes.
I had a bunch. I understood her medications and her breathing treatments. I understood our follow up appointments and home health nurse schedules.
But what happens when she asks why this happened?
What do I tell her when kids point to the big scar on her little chest?
How do we deal with people looking at her leg? Those looks of relief on others faces that it isn’t their child?
How do we juggle all the appointments? Therapy sessions, PT, orthopedic, cardiologist, kidney specialist?
Will she be able to do all the things other kids do?
How do we pay for all of this?
How do I deal with this guilt taking up permanent residence in my chest?
Will it get easier to breathe?
Will it always be this frightening?
What if I cant be brave for her?
I felt James’s hand squeeze mine. I felt his strong presence next to me as he smiled reassuringly at me as he told the doctor……
“I think we’ll be ok.”
About Me
Jaime
Hi Y'all! My name is Jaime and it's so nice to meet you! Welcome to The Princess & The Prosthetic! This brand is inspired by my daughter Callie who is a lower limb amputee. We're dedicated to inspiring others to embrace their own perfectly imperfect fairytale. We advocate for people with disabilities and hope to inspire everyone--regardless of ability--to love and accept themselves just they way they are! I am a story teller at heart and this blog is a virtual scrapbook of our crazy beautiful life. You're in the right place if you are a huge book nerd, drink coffee like your life depends on it, and run on dry shampoo and Amazon Prime. We live a semi-crunchy lifestyle but still love a good Texas BBQ. Inclusion is our love language. You can find us either on the archery range, at the stables, on a hiking trail, or walking our rescue dog, Jack! We are so grateful that you’ve found us—welcome to the fam. Read More
Jaime
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Ways I’m Romanticizing my Bedtime Routine
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The Loneliness of Disability Parenting
April 18, 2024
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